hello all,
Kylie went back in the OR @ 11:30. Surgery is scheduled for 1-2 hours. The surgeon said it could be faster. She is prob. getting a new shunt. Unless the dr sees a reason it is not working and can fix a part.
Please pray for her as she is very discouraged. She wants to get better. Please pray for her attitude towards the adversity she is facing.
We will update after surgery.
Thanks,
Karli & Josh
Friday, October 15, 2010
Wednesday, October 13, 2010
Update on Kylie
Hello Friends and Family,
A few weeks ago Kylie's headaches became worse, but she keep on. I could tell we had an issue but we were keeping positive. Last weekend Josh and I noticed a swelling mussy mass under her shunt. We were keeping an eye in it, through the week it got bigger. The shunt scar was starting to kinda sink in and the swelling was worse. Then also the reservoir part of the shunt started sticking out. I know this is kinda hard to understand but it is the best i can explain, all the fellow IHers prob understand. So this weekend she became worse, The Dr said to come in to er last night for evaluation so we did. They immediately admitted her for the swelling looking like a possible leak. She is scheduled to go back any minute to surgery, the r doing a nuclear dye test to test function of shunt and also a tap to check pressure. Then we will go from there. Also the optho reports she is having optic nerve leakage.
So at this point we don't know anything but the symptoms.. I will update as soon as i know more info. Or i will con my sister into doing it again. :) thanks for keeping up w the strongest little girl in the world. and an amazing little bro that ALWAYS rolls w the flow.
Keeping Faith,
The Reagan's
P.S.- u can go to the dell web site and send cards for free link is below. She loves getting the cards send as many as u want. Also u can send stuff from gift shop but the cards r free.
Room 335
http://www.dellchildrens.net/patient_get_well_cards
A few weeks ago Kylie's headaches became worse, but she keep on. I could tell we had an issue but we were keeping positive. Last weekend Josh and I noticed a swelling mussy mass under her shunt. We were keeping an eye in it, through the week it got bigger. The shunt scar was starting to kinda sink in and the swelling was worse. Then also the reservoir part of the shunt started sticking out. I know this is kinda hard to understand but it is the best i can explain, all the fellow IHers prob understand. So this weekend she became worse, The Dr said to come in to er last night for evaluation so we did. They immediately admitted her for the swelling looking like a possible leak. She is scheduled to go back any minute to surgery, the r doing a nuclear dye test to test function of shunt and also a tap to check pressure. Then we will go from there. Also the optho reports she is having optic nerve leakage.
So at this point we don't know anything but the symptoms.. I will update as soon as i know more info. Or i will con my sister into doing it again. :) thanks for keeping up w the strongest little girl in the world. and an amazing little bro that ALWAYS rolls w the flow.
Keeping Faith,
The Reagan's
P.S.- u can go to the dell web site and send cards for free link is below. She loves getting the cards send as many as u want. Also u can send stuff from gift shop but the cards r free.
Room 335
http://www.dellchildrens.net/patient_get_well_cards
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