Hi Friends & Family,
It is Thursday, 10/22 and we were readmitted last night to the hospital. Since we came home Sunday, Kylie has not made any head way. On Monday night she was in bad pain, we looked at her back and it literally looked like the shunt was protruding out of her back. You could c and feel the tube and the shunt. Which was not like this Sunday, she just had minimal "surgery swelling" Then Monday in the night the leg tremors came back, not near as bad as they were,but back regardless. So Tue the Dr put her on 24 hr bed rest and tried to c if the swelling would go down. She still was not eating or drinking. So on Wednesday we called back in to the surgeon, after the bed rest and we saw no improvement in the swelling. They asked us to bring her in. When we got there the Dr decided that we need to check the placement of the shunt. With it sticking out like it was there was a possibility the shunt became dislodged or the tube became disengaged. Also, leaking or worsen of the meningitis. Also, she was dehydrated so we needed to do iv fluids. We did some scans when we got here yesterday, over night she still didn't eat really, this morning the Dr came in with the results from the scans and the shunt is still in place!! PRAISE GOD!! He said we may have a possible leak of spinal fluid, out of shunt, or the spinal cord. The only way to know is to watch the swelling and see if it increases or changes. So right now we are still waiting. We took Kylie down to a musical performance and she was up 30 minutes before we got back she was nauseated, dizzy and in a lot of pain. So right now we don't know much.. on the leak there is 2 options, A: the leak will heal on it's own (scar tissue will build up) B: Surgery to do a few stitches to close the leak. We will see soon - we will see the Dr late afternoon or evening then he will make the decision. Thanks for the prayers.. Also please keep our little man in your prayers as he came down with strep throat. I am dying not being able to take care of him.
Humble and Scared,
Josh & Karli Reagan
I just spoke with Karli and the Neuro's assistant came in awhile ago and said the swelling is worse and it has started to bruise. The neuro surgeon will be coming back in the morning to determine if he needs to replace the shunt or fix the leak. There is the possibility of them putting in a shunt with a lumbar drain ( pray not ). Karli will update her blog http://karlireagan.blogspot.com/ later with more details. Surgery will be tomorrow or Sunday if the swellingis not down.
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