2 am update...

Thanks for all who r following and praying along with us. We know your hearts are breaking along with ours but WE WILL PRAISE HIM IN THIS STORM!!!

We did get results from the testing today, the results are her opening pressure was 26-29 normal is 5-15. Her shunt setting is 15 so this was our 1st indication something was wrong with the shunt. She was a trooper and made it through all day of surgery and test, then some more test! The dr came in this evening and said that the nuclear dye they injected into her spine didn't flow through the shunt, meaning something is wrong with the shunt. This test is not complete as she has to do more scans in the morning to see if the dye has moved anymore. From here the surgeon said we will be doing a shunt "revision" This means either replacing the part or tube that is not working. For example a tube may be clogged or something mechanical may need to b replaced, and or a new shunt all together. He also stated there are more and different shunt to consider. Which we will discuss once the data from the test is complete. There was one other alarming thing one the scan that the surgeon or radiologist was not sure what is was so they will look further into in in the scan in the morning. We don't have a time for the scans to start. Today we started around 8 am. We have not told Kylie for sure that she will have to get a new shunt yet. The dr also said we will do the surgery as soon as possible. I know this is not alot of answers but it is all we know at this point. we are sorry we cant answer our phones but it is easier to just get the info out at once.

Here is a list of our prayer request:
-discernment for the scans
-clear answer on problem of they see of concern on the scan
-peace, comfort, understanding for our family and KYLIE!!
-for this shunt to work
-for the pain to be taken away
-Joshua(in general, as once again he is passed around while we are caring for Kylie)
-rest to be fulfilling, weather we get 1, 2, or 3 hours
-Kylie's legs to stop spasming
-her waking up from surgery to be better (not Linda Blair)
-our finances as another surgery might kill us!
-also the chance for us to b positive and Gods witnesses with every word we speak

Walking by Faith,
Josh & Karli Reagan

Also Kylie wants to make a bunch of braclets to donate to the intracranial foundaton to raise money for research. If you have anything laying around we would love to have it to help raise $ to find a cure to fight this condition!! We have some things, but we need lots of help from friends to help us make them!!

one more thing please send the free cards from dell to kylie room 211. They r free and make her soooo happy!! here is the link..

http://www.dellchildrens.net/patient_get_well_cards