4-19-10

good evening all...
well today has been a roller coaster!! Kylie has been pretty sick today. She was able to get up and go pick out a few movies and pick 5 books for her brother. Then we made it to gift shop and she got to get him a gift. She is having a hard time missing daddy and bubba. She has cried for both of them. I think both will B able to get here tomorrow.

Ms. Jessica came and jumped my broke down car !! Thanks !!

Mrs. Kristi Felty and Ally came with coffee to hang out. That was a nice surprise. Also she got to be here for the Dr's. Which was so nice to have another set of ears.

Dr.George, had said he will think over all the questions i have and meet with us tomorrow. But he was worried about her kidneys. as i stated her urine earlier and since then only one more time off 200 ml. so he ordered a bladder scan after the urination her bladder still held 168 ml of fluid. so he has order and kidney scan @ 7am in the morning. This test will show if the dye damaged her kidneys. They have upped her iv back to 75. from 10. Valerie the PA we don't care for was in here today while Dr George went over things and u could tell he was very disappointed in the way she had been treating us. I have asked for a meeting with the neuro, neurosurgeon and Josh and I. I plan on addressing all the issues we have been having and the lack of care they have given us. Also Dr. George said Kylie will not leave until we r sure all is ok and her shunt is functioning properly.

The diagnoses of chemical meningitis has been confirmed and she is being treating for it.

idk what else, except I AM TIRED !! AND MORE THAN TIRED I MISS MY FAMILY BEING TOGETHER!!

Kylie is still on max dose of morphine, toradol, zofrain, and bendryl. so please keep praying we r ready for this to be over.

Thanks for everything -
Karli Reagan :)
Keepin the faith ( trying too)