Hello friends & family,
Kylie is still here at dell, and so are we we didn't abandon her YET!! We can truly say we don't know whats going on. She is still not "bouncing back" She is not eating, drinking, or potty like she should. Her head is still hurting when she gets up. She has become VERY AGGRAVATED!!! Kylie is normally a very sweet little girl. We have truly thought about an exorcism to stop the behavior. We cant explain it or understand it. To all my IHer's out there i am reading this is normal when pressure is high? But how? we just had her shunt fixed. i have asked if she is not better. to repeat the dye test to recheck the shunt, idk if this is the best idea but idk what else to do. we are lost for any ideas. So if you have some please send ASAP!!!! Before Mommy and daddy lose it! We have her on Boost for nutrition and have restarted all iv fluids (fully) she is down 7 pounds. If there is anyone that would like to keep the blog up please let me know and i will call u with info but i have no time !! she is still up and almost puking so who knows how long we will b up but i will NEVER QUIT FIGHTING!!!!! I am truly blessed to be right here with her at all times and i have a baby to hold!! So please understand i am not complaining!! I am blessed and so thankful, but to be honest I'm frustrated!! Good night - i will try to update after cing Dr tomorrow.
May God lead your path!
The Reagan's
Josh is at home with Joshua tonight life is SOOOO good!!
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