update on surgery and the night thus far..

Kylie's surgery went well it took over 1 hour. they made the incision in the tummy and removed the tube that drains the cfs (cerebral spinal fluid). The tube was either clogged, blocked or something. The shunt was function great. They repeated the dye test to ensure flow and it was working properly. She woke up great from the anisthisa.(praise GOD) We got back to the room and she had a pretty good few hours, then the pain was just uncontrollable. she is on a morphine drip and pump. But this still was not enough, they double her dose and it seems to help but not take the pain away. Dr said this will be a tough recovery.

They have requested at this point NO school or actives for a MINIMUM of 2 weeks when they came in tonight and her pain like it is he said we r looking at prob 2-4 weeks. Please keep this in your prayers. I will go into more detail after i talk to school tomorrow.

So then my mom brought us some food around 3 we ate and all took a nap to Josh waking up vomiting. So we quickly sent him away!!! He is home but he is very sad and upset he feels like a failure for not being here. Please text or call and lift him please as he is very down, also pray for our little man as one of my family members will be taking him to school tomorrow and idk what is in his bag or anything so momma is worried.

Tonight about 10 Kylie started feeling a very stick neck, low grade temp, and leg spams, also has NO feeling in feet. Please ask and beg to God this is not the symptoms chemical meningitis again. she did get this the 1st shunt surgery and it means hard antibiotics and a longer stay here! YUCK!!

Tomorrow we will be under the care of Dr George, and my fav PA Valerie, please pray for the words i say as i feel some strong feels about the PA. I need to stay positive for Kylie but address the problem so no other child is every treated the way my baby was. And being here alone is going to be hard to arrange a time to talk wo having her with me.

She cant go home on morphine so our goals are weaning off morphine to pills
walking to "get things moving"

Thanks for taking the time to read this and keeping us in your prayers .....

Karli Reagan and Josh Reagan

Sorry for such a late update but wow i cant get this all done!

please remember you can send her free cards to room 335 http://www.dellchildrens.net/patient_get_well_cards

also she has not had very many visitors if u would like to come you are more than welcome just call and i will let you know if it a good time on that note the port to charge my phone is broken so anyone with a blackberry is more than welcome so i can charge my battery in your phone while your here! you can call 512-788-6437 or text or call 512-324-0335 for our room